Decision

We have been busy! The fall season is upon us and Luke is getting back to his old sickly self. We made it 9 days into October before our first hospital visit. I think last year it was sooner than that. Way to go Luke! Wednesday morning I was awoken by Luke screaming and sounding awful because he was having trouble breathing. After trying various things here at home I decided enough was enough and rushed him to the nearest ER, which happened to be IU North. I broke several laws on the way there, so to any cops I passed...sorry. They took excellent care of him there. They diagnosed him with croup, and after 6 breathing treatments we were on our way home. He is doing much better now. He just sounds horribly congested in his sinuses. Matt is convinced he needs to "hock up a loogie" and has been trying to teach him how.....

I finally decided the new therapist wasn't a good match for us and made plans to have Luke evaluated at another place. Per our First Steps Physical Therapist Sharon's recommendation I called the pediatric rehab people with St. Vincent's. Luke's evaluation was today. I loved this place the moment I walked in! The lady I met with was super nice. She said she agreed that Luke needed more therapy and had many other suggestions. She wants him standing. This should help develop more muscles that he will can use now and later and also will help his spine (which is something I never thought of). She said kids who can't sit/stand can develop scoliosis from not being in the right position. The wheelchair topic came up again. At this point I think I am ready for Luke to get a wheelchair. I am trying not to think of it as the "end all be all" of his life and that far ahead, but instead as what will make him happy. She made many good points as to how a wheelchair will make him happier, and eventually keep him in line with his peers once starting preschool. For the standing, she wants to get him braces for his feet (he curls his toes and rotates his feet) and braces for his knees (to keep them straight), along with a "stander". I was ready.....lets go!
Then, insurance happened.
When trying to make the appointments necessary to get all this in order, I was informed by the lady that does all the scheduling/insurance stuff that per our insurance company, Luke had "exhausted" his funds for any more physical therapy and equipment! We haven't gotten a damn thing from them! I was flaming mad! I spend the rest of the day on the phone with various people and still have not gotten any answers. I have to work tomorrow, but will be back on the case Wednesday.

Luke is still being awful most of the day and especially in the afternoon/evening. He doesn't want me to put him down and screams at the top of his lungs if I do. I have been letting him cry, but it doesn't seem to be working.

That is all for now :)